At the beginning of this crazy journey of being a parent of a child with special needs, I spent too much time listening to the thoughts, beliefs and visions of those around me.
Jordan has spent the majority of his life in the shadows of his sister--the therapy sessions, the behaviour issues, the extra attention, etc. Here are my some of my lessons learned for communicating with my neurotypical son.
What if we turned these experiences of change and challenge on their head? Regardless of how we feel - sad, angry, disappointment, grief - we remind ourselves that these emotions are normal.
Hope - sometimes it serves us well and other times it feels like a slap in the face. Everyday, as a mother of a child with autism and a rare genetic disease, I get up and I try and try again. Never quite knowing what the day will look like. Yet, always hoping for the best.
I am grateful that I get to spend this time with her and her brother. I will honour this time of a more relaxed schedule.
Whichever route a family chooses, what matters is knowing when to ask for help and how to get the right help to care for any family member that needs an additional helping hand.
Comparing or minimizing our caregiving-related trauma can prevent us from healing. It’s never about the label itself, it’s about finding the tools, strategies, and supports to help you heal, find acceptance, and live a meaningful life.
What I discovered was that resistance is two energies competing against one another. The energy to evolve versus the energy to stay the same.
If I had to choose a female superhero to represent a family caregiver, I would choose a warrior that has a shield engraved with the letter “S”. The “S” stands for softness, spirit and self-awareness.
When people get tired and frustrated, compassion is usually one of the first things to go out the window. When actually, that’s when we need it most. Both compassion for ourselves and compassion for others.