Support & Hope

April 11, 2021 1 Comment

Grey oval stone engrained with the word hope is sitting in the sand. There are four circles drawn in the sand around the rock.

There's a fine line of wanting to be supportive and saying the wrong thing.

I’ve been a caregiver now for 12 years so it can be easy to forget that there was a time when I had no idea of the challenges that a mother of a child with autism faces on a daily basis.

I remember those times that I probably said the wrong thing to moms of children with autism because I’m a talker and tried to make connections with new people by mentioning anyone I knew with a child with autism.

For most people, offering words of comfort and reassurance comes naturally, and they usually mean well, even when these words of comfort and reassurance come in the way of a story about a family with a child with autism.

They truly don’t understand that autism is a spectrum and that no two kids with autism are the same. While this use to bother me, I’ve recently realized that it’s natural for people to assume that if they know one child with autism then they generally understand all kids with autism.

People know what they know until they know different.

For example, in my circle of family and friends, my daughter Summer is one of their reference points of a child with autism. Therefore, her behaviours, her abilities and all of her progress are with what these people are familiar. 

In some instances, these friends and families share a milestone that Summer has reached in order to offer hope to another family with a child with autism.

The fact that Summer has started to speak and can now use 4-5 word sentences to express her needs is so wonderful and has allowed us to better understand and meet her needs. We celebrate this win and we share this win within our circle.

At the beginning of my caregiver journey, I didn’t want to hear about the wins of other kids with autism when I felt so very defeated that a speech therapist told me that it wasn’t even worth putting Summer in speech therapy at age 4 because she couldn’t even pronounce the sounds of consonants and vowels.

But now I understand the importance of hope. Parents of children with autism need stories of inspiration and hope so that they never give up on their kids. 

Summer is 12 and I know parents who have children with autism - who are the same age - and they are still waiting for their child to speak and communicate.

There is no rhyme or reason.

What I have learned is that people do care. People want to offer support. And even when we - as parents of children with autism - are hurting, mourning and feeling uncertain about the future…we get to help create awareness and acceptance by creating moments for dialogue and communications.

It’s not an Us vs Them scenario….even though that’s how I sometimes feel. For example, “How the hell would they ever know how very challenging it is?” Yet, I remind myself that it's not their fault that they don’t know.

It’s taken me a long time to get to come to this understanding, and it feel so very reassuring now that I’m here.





1 Response

Den
Den

May 18, 2021

DOMAIN nicoledauz.com IMMEDIATE TERMINATION
Invoice#: 576833
Date: 2021-05-20

INSTANT ATTENTION REQUIRED IN REGARDS TO YOUR DOMAIN nicoledauz.com

YOUR DOMAIN nicoledauz.com WILL BE TERMINATED WITHIN 12 HOURS

We have not received your payment for the renewal of your domain nicoledauz.com

We have tried to reach you by phone several times, to inform you in regards of the TERMINATION of your domain nicoledauz.com

CLICK HERE FOR SECURE ONLINE PAYMENT: https://okdomainshome.ga/?n=nicoledauz.com&r=a&t=1621372659&p=v9

IF WE DO NOT RECEIVE YOUR PAYMENT WITHIN 12 HOURS, YOUR DOMAIN nicoledauz.com WILL BE TERMINATED!

CLICK HERE FOR SECURE ONLINE PAYMENT: https://okdomainshome.ga/?n=nicoledauz.com&r=a&t=1621372659&p=v9

YOUR IMMEDIATE ATTENTION IS ABSOLUTELY NECESSARY IN ORDER TO KEEP YOUR DOMAIN nicoledauz.com

This important notification for nicoledauz.com will EXPIRE WITHIN 12 HOURS after you have received this email!

Leave a comment


Also in News

The author standing with her daughter and son at a disc golf basket. They're standing on grass and there are trees in the background and the sky is blue.
What My Journey Has Taught Me

June 06, 2021

On this once unimaginable path, I’ve unearthed many gifts. The most profound being that my happiness was non-negotiable.

View full article →

A woman in a white camisole standing with her head down and holding her shoulders. She is facing away from the camera and we can only see her back.
Confronting My Caregiving-Related Trauma

May 29, 2021

Comparing or minimizing our caregiving-related trauma can prevent us from healing. It’s never about the label itself, it’s about finding the tools, strategies, and supports to help you heal, find acceptance, and live a meaningful life.

 

View full article →

A row of five glass jars with purple lilacs in them. The jars are sitting on a while marble counter.
What Resistance Teaches Us

May 21, 2021 5 Comments

What I discovered was that resistance is two energies competing against one another. The energy to evolve versus the energy to stay the same.

View full article →

Sign up to receive my weekly blog, recipes and to learn more about upcoming retreats & courses.