The Power of Hope

August 28, 2019

The Power of Hope

When people ask how Summer is doing, I usually respond using the phrase “Big picture, she is doing great….”

Maybe it's my communications background that I always like to put things into perspective. Maybe it is my decision to be positive and have hope that also make me frame my response in this manner.

Raising a child with special needs is very challenging. It mostly is the day-to-day activities that require so much effort; however, after a while, these activities feel normal as they simply have become part of the routine. It's only when I'm around kids who are Summer’s age or younger that I'm reminded of how easy parenting can be when a child is self-sufficient and does not require constant supervision.

All of those things aside, Summer is doing great and she does continue to progress, and at the end of the day, that is the hope that I cling to. 

A few months ago, I was reminded how progress can appear - Summer woke up, got out of bed, turned on the lights and went to the bathroom all by herself. My first instinct was to jump out of bed and go and help her (don’t want the entire roll of toilet paper ending up in the toilet). Mike said wait, “she’s doing it on her own”. So we waited and she completed her task and then came into our bedroom. We congratulated her and I could see the pride that she had for going to the bathroom all on her own.

Wow! That is huge progress. This small act of independence represents the bigger hope that I hold for her. 

Having hope does not make the tantrums go away; having hope does not make Summer listen better; it simply is a choice that I’ve made to help me cope with life’s circumstances.

The wonderful thing about hope is that no one can take it away from me - the specialists, the doctors, the therapists. 

I wish all of the amazing caregivers who are spending their days looking after kids with special needs; that they can find hope in something. Celebrate the small victories and love that child with all of your heart - there is nothing better. 

 

 





Leave a comment


Also in News

a grey square with a white thought bubble in the top right corner
Stories That We Tell Ourselves

September 17, 2020

Thankfully, there is good news. We can slowly move the marker from mostly negative thoughts to fewer negative thoughts.

View full article →

A group of people standing in a line with their back to the camera and they're looking into a sunset. You can only see the silhouettes of men, women and children. It represents community and closeness. Some people are holding hands, leaning on one another
What Does Community Mean?

August 31, 2020

As we all know, caregiving doesn’t discriminate against age, race, religion or sexual orientation.  Therefore, there are lots of opinions, ideas, experiences and perspectives that come to the caregiver table.

View full article →

A photo of five frozen dairy bars laying on a while marble counter melting and making a mess
Managing Emotions & the Role of Forgiveness

August 21, 2020

When I’m wearing my caregiver cape, I somehow convince myself that I need to be perfect (which is impossible, by the way….) and part of that includes believing that I shouldn’t have any negative emotions related to caring for my daughter.

View full article →

Sign up to receive my weekly blog, recipes and to learn more about upcoming retreats & courses.